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Adapting & Operationalizing the Women-Centered HIV Care Model for Trans Women Living with HIV

adapting-operationalizing-the-women-centered-hiv-care-model-for-trans-women-living-with-hiv

Researcher bios and how their research backgrounds relate to this study

Yasmeen Persad: Yasmeen Persad is a Trans /Activist who has been providing education and training around LGBT related issues for the past 10 years. Her experience ranges from working with Trans Youth, HIV Positive Women, Sex Workers and many diverse populations. She provides training to service providers around Trans community inclusion and support. Yasmeen has presented at many Conferences across North America on various topics about access for Trans people. She is currently a Research Coordinator at Women’s College Hospital, working with Trans Women and HIV.

Mona Loutfy: Dr. Mona Loutfy is a Professor, Infectious Diseases Specialist and Senior Clinician Scientist at Women’s College Hospital and the University of Toronto. She launched the Women and HIV Research Program at the Women’s College Research Institute in 2006 to carry out social justice research related to women, reproductive health, stigma, retention in care and HIV and HCV. She works from a community-based research model involving the people that her research will affect at all stages. In 2017, Mona received a CIHR Foundation Grant for her Research Program with the launching of the Trans Women Research Initiative as one of the objectives.

Ashley Lacombe-Duncan: Ashley (she/her) received her MSW (2010) and PhD (2018) from the Factor-Inwentash Faculty of Social Work at the University of Toronto. Her community-based interdisciplinary research agenda advances two overarching areas: (1) Sexual and reproductive healthcare access among lesbian, gay, bisexual, transgender (trans), queer and other sexuality and gender diverse (LGBTQ+) people and women living with HIV, with a substantive focus on trans women living with HIV; and, (2) Social ecological, intersectionality and multi-level stigma theoretical approaches applied to understand and address LGBTQ+ and women living with HIV’s health in local and global contexts. Lacombe-Duncan’s work informs interventions to remove multi-level barriers and increase access to intersectionally affirming healthcare.

Purpose of this research project

This study is gaining feedback from trans women living and affected by HIV about an existing women-centered HIV care model. Approximately 24 participants will be recruited from across Canada, with focus on Toronto and Vancouver. This study is expected to last 28 weeks in total, although participation will take 1 week. The goal of this study is to improve the healthcare and overall health of trans women living with and affected by HIV by creating a Trans Women-centred HIV care (WCHC) model that can be used as a guide to care for trans women with HIV in healthcare settings. The interview participants are being asked to participate in will help us develop this care model.

How this research will help LGBT2SQ people and communities

The feedback collected in interviews will help adapt the women-centered hiv care model for trans women living with and affected by HIV, as well create a toolkit for service and healthcare providers working with trans women and transfeminine folks.

Participants

- People over the age of 18 who believe they would benefit from a healthcare model designed for trans women and transfeminine folks.
- Must be willing to attend an in-person or virtual audio-recorded interview.

Compensation

$50 after the completion of an interview.

Mitigation measures

We do not expect this study to cause you or others any harm. The research team has considerable experience and understanding of the lived experiences of trans women, including trans women living with HIV.
Some of the questions you will be asked to think about and discuss during the interview may make you feel emotional or upset. You are not required to answer any questions that may make you feel uncomfortable and you are not required to share any information that you wish to keep private. You are welcome to stop participating in the interview at any time and/or skip particular questions that you would prefer not to answer.
While we will do everything we can to ensure the data and consent forms are brought to and secured at Women’s College Hospital promptly following data collection, there is always a chance that something may prevent that. If you are concerned about this, please do use a fake name (i.e. pseudonym) on the consent form to avoid potential identification.
There may be risks associated with this study that we have not considered; please let us know if you experience any of these risks so we can try to provide you with appropriate resources and support and we can revise our consent form for future work.
We will provide you with information about the 519 and other local counselling services where you can find additional support.

Promoting the Study

We are working with Yasmeen Persad, a facillitator at the 519 and trans community leader in Toronto. We are also using pre-existing relationships with doctors, nurses, and members of the circle of care who provide services to trans, non-binary, and gender-diverse folks in Toronto. Additionally, we are working with community and social organizations to recruit participants.

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