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Begin Exploring Fertility Options, Risks and Expectations (BEFORE): Canadian e-health apps for shared decision-making with people at risk of cancer treatment

Purpose of this research project

Our team is currently working on a study aimed at improving the quality of fertility decision-making for young cancer patients in Canada. Some cancer treatments can cause infertility in survivorship and currently patients feel as though they do not have sufficient information to make decisions on preserving their fertility before treatment or information on parenthood options after treatment.

Through this study we are in the process of creating mobile apps that will provide information and help young cancer patients make fertility related decisions before or after they have treatment. It is our intention that this tool is inclusive and supports a diverse Canadian population.

How this research will help LGBT2SQ people and communities

Some cancer treatments can cause infertility in survivorship and currently patients feel as though they do not have sufficient information to make decisions on preserving their fertility before treatment or information on parenthood options after treatment. Through this study we are in the process of creating mobile apps that will provide information and help young cancer patients make fertility related decisions before or after they have treatment. It is our hope that by including the LGBT2SQ community in all areas of the study, we will create a tool that is inclusive and supports a diverse Canadian population.

Participants

You are eligible for this study if:

You were diagnosed with cancer between the ages of 18 and 45
You completed surgery, chemotherapy and radiation for your cancer in the last 5 years
You are a health care provider who provides cancer care to young adults at risk of treatment-related infertility

Compensation

There are multiple ways you can be involved in this study. Compensation and participation is as follows:

(1)member of the steering group to guide development of the app -$50/engagement activity (max $300)
(2)rapid review of the app- $50/engagement activity
(3)participation in focus group to evaluate the app: $20 gift card for focus groups participants/interview participants
(4)participation in stakeholder meeting to finalize the app: $150 for patients/partner participants at the stakeholder meeting

* Travel will also be covered

Mitigation measures

We are reimbursing for expenses incurred as a result of participation in our research (i.e. travel, meals) as well as compensating for time. Some questions asked or discussions in the steering groups, rapid feedback sessions, focus groups/interviews and stakeholder meetings may be considered sensitive (recollection of experiences) to some participants resulting in psychological distress. If distress is experienced by any participant, the research team will refer them to their family physician, social worker, psychiatrist, or psychologist, depending on their preference.

RainbowHealthOntario @RainbowHealthOn Sep 10

Open research closing soon - Begin exploring fertility options, risks and expectations (BEFORE): Canadian e-health… twitter.com/i/web/status/1…

RainbowHealthOntario @LGBTQ_Research Sep 10

Exciting LGBTQ+ health opportunity 👇 twitter.com/XtraMagazine/s…

RainbowHealthOntario @RainbowHealthOn Sep 9

Can't wait! twitter.com/shctoronto/sta…

RainbowHealthOntario @GabrielEnxuga Sep 8

Bumping this! We are looking for physician participants to test a gender-affirming medicine educational resource. H… https://t.co/qNnpGNSOx7