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Forgotten lives: The experiences of trans older adults with dementia

forgotten-lives-the-experiences-of-trans-older-adults-with-dementia

Researcher bios and how their research backgrounds relate to this study

Marjorie Silverman, PhD in Social Work, is an Associate Professor in the School of Social Work at the University of Ottawa. Drawing on her clinical experience, critical social gerontological perspectives, and creative qualitative methods, she conducts research on topics related to family caregiving, dementia, place and space, the sociology of the body, and most recently, trans and gender studies. She has published articles in numerous scientific journals.

Alexandre Baril (PhD Women’s Studies) is an Associate Professor at the School of Social Work at the University of Ottawa. His work, conducted from an intersectional perspective, lies at the crossroads of gender, queer, trans, disability, critical gerontology and critical suicidology studies. His recently completed manuscript is entitled Suicidism: A trans, queer, crip approach to rethinking (assisted) suicide. His passion and commitment to equity have earned him several awards for his involvement in the queer, trans and disability communities, including the Tanis Doe Francophone Award from the Canadian Association for Disability Studies (2020) for his research, teaching and activism. A prolific writer, he has over 60 publications.

Purpose of this research project

This research is guided by the following question: What are the lived experiences of older trans people living with dementia and their carers?

The objectives of the project are:

1) To develop new knowledge about how the intersections of gender identity, cognitive impairment and age are experienced in everyday life;

2) To explore and document the everyday realities of the intersections of oppressions and forms of discrimination that these people experience;

3) To develop recommendations for practitioners working with these populations as well as for policy makers.

How this research will help LGBT2SQ people and communities

This research is conducted from a trans-affirmative and positive perspective towards disability and age and aims to improve the lives of marginalised populations and give back to these communities through a wide range of knowledge dissemination activities. Through the testimonials of trans seniors living with dementia, and those of their carers, we hope to develop recommendations for improving the support and quality of life of this population.

Participants

-A person over 50 years of age living with Alzheimer's or dementia (moderate or advanced, no official diagnosis needed) who identifies as a trans person (transsexual, transgender, non-binary, etc)
-A person over 18 years of age who is a caregiver to a trans person with Alzheimer's or dementia (moderate or advanced, no official diagnosis needed) and who provides support and assistance on a regular basis, at least monthly

Compensation

A $25 gift card as a thank you for participating .

Mitigation measures

At any time, the participant can withdraw from the project, stop the interview, or refuse to answer questions that may make them uncomfortable. Psychological resources are provided to participants as needed. Special measures are taken for people living with dementia (2 short interviews rather than one long one) to reduce anxiety and fatigue. Consideration of non-verbal cues is central to our interviews.

Promoting the Study

We are asking all LGBTQI2S+ organisations, institutions or professionals working with adult trans* people to help us with outreach to recruit our participants. We will also contact organisations working with older people.

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